22q11 duplication syndrome
Use of consented DECIPHER data
Anyone who proposes to publish material which uses data obtained from the DECIPHER database agrees to:
- Acknowledge the DECIPHER Consortium; and
- Contact the coordinator of the centre that entered the data on any individual who they wish to include in their report and offer appropriate agreed recognition of their contribution, which may include co-authorship if the magnitude of the contribution warrants it to at least one representative from the project/participating centre (possibly the member who submitted the patient data). This can be achieved by emailing a request to firstname.lastname@example.org
Access to bulk data may be obtained from DECIPHER and is subject to a Data Access Agreement, in which the user certifies that no attempt to identify individual patients will be undertaken. The same restrictions apply to the public data displayed on this website: no one is authorized to attempt to identify patients by any means.